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A Data Package which is a database of public and private registers of clinical trials.

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# OpenTrials Public and Private Registries

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This is [data package](http://dataprotocols.org/data-packages/) with
information on public and private registries of clinical trials.  It
intended to be used to track sources of trial data for the
[OpenTrials](http://opentrials.net) platform and to document existing
and possible methods of data extraction.

The majority of information about registries comes from the
[WHO ICTRP](http://www.who.int/ictrp/network/primary/en/)
(International Clinical Trials Registry Platform) and the websites of
the individual registries.

For registers that are members of WHO's ICTRP, another option for data
acquisition would be to write a generic parser for the XML dump
provided to ICTRP.  We would also need to source the dump URL per
register.

## Existing Tooling for Scraping Clinical Trials Data

### ClinicalTrials.gov

Many options for scraping Clinical Trials exist.  It is the largest
source for structured clinical trials data.  The scraper we will use
has been started here:

https://github.com/roll/clinicaltrials-scraper

### ISRCTN.org

This is currently a very basic scraper for scraping ISRCTN (currently
only downloading identifiers e.g. ISRCTN41598423, but can be easily
extended).

https://github.com/annapowellsmith/isrctn

### EU Clinical Trials Register (EU-CTR)

There are comparatively few options for scraping EU Clinical Trials
Register data, but a potentially useful R package for retrieving both
CT and EU data exists here.

https://github.com/rfhb/ctrdata

### Australian New Zealand Clinical Trials Registry (ANZCTR)

There is an existing scraper written for scraping data from the
Australia and New Zealand register here:

https://classic.scraperwiki.com/scrapers/australia_new_zealand_clinical_trials/

https://github.com/tfmorris/australia_new_zealand_clinical_trials/blob/master/scraper.py

### Brazilian Clinical Trials Registry (ReBec)

This is both the code and scraper for the Brazilian Clinical Trials
Registry.  The repo actually contains a very small dump (57 trials in
XML form) in the repo.  Trials have WHO's UTN
([Uniform Trial Number](http://www.who.int/ictrp/unambiguous_identification/utn/en/)):
Another option for data acquisition would be to write a generic parser
for registers that provide XML dumps to ICTRP.  DUMP_URL =
'http://www.ensaiosclinicos.gov.br/rg/all/xml/ictrp'.

https://github.com/bireme/opentrials/tree/master/data

### Japan Primary Registries Network (JPRN)

This is a scraper for the Japanese network of clinical trials.  We
would most likely create an entirely new scraper:

https://github.com/nick111/MedicalDataCrawl/commit/bdefcfa27009dca60d89edc40a806b19be2dd3a9

### Clinical Trial Registry of the University Medical Center Freiburg